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Rare Friends is an event organized by five like-minded young friends for the Second Jockey Club Glocal Hero Tournament held by Voltra. The objectives of this event is twofold: to promote social inclusion and harmony among the participants in order to enhance participants' awareness of Angelman Syndrome, thus strengthening the care of the public to Angelman Syndrome and their families for social inclusion; to promote “Priority tables” in OneClickCare program, thus making the public to be more aware of the upcoming big move by HKASF.
Recently five friends of "Rare Friends", took the initiative to contact HKASF and hope we can support and provide assistance to them. We are naturally pleased and after several in-depth communications and exchange of views, we finally decided to have the meaningful event take place at Hong Kong University on October 7 afternoon. More than 60 participants, including the five members of "Rare Friends", nearly 20 people in four families of angels, 20 volunteers from the University of Hong Kong and nearly 20 volunteers from the public. The Social Services Department of the University of Hong Kong supported Rare Friends by sending cabinet members to serve as team helpers and recruiters and financing venue leases and supplies for the event. With these enthusiastic college students contributing their efforts with hearts, the event was definitely a success.
The first part of the activity was conducted at a vegetarian restaurant in University of Hong Kong. This restaurant is also a restaurant that supports “Priority tables” of OneClickCare program. Starting from 2:30 p.m., after introducing the program, the process and various agencies, two rounds of "Live Library" activities were conducted. Each library includes an angel family and about eight participants. The angel family spoke first of how to get along with the angel. Then the participants asked questions / chatted with the patient's family for about 25 minutes. The chat aimed to raise participants' awareness of the disease. Along with the chat, everyone enjoyed the food provided by the restaurant. The atmosphere was relaxing and casual. At the close of the library, all participants were also given a heart card to write down blessings or encouraging words to angel families. Before leaving all gathered for a group photo.
The second part of the activity was moved to an open space in the student union hall of the University of Hong Kong for angelic painting. Using seven different colored paint colors, family and members of the angels were allowed to paint the canvas on {We are the Angels}. This activity was meaningful as you could that they participated passively initially to actively putting them in this simple interesting activity. The completed masterpiece would be kept by the Hong Kong Angelman Syndrome Foundation.
The last part was to return to the vegetarian restaurant to take a promotional video for “Priority tables”. We again needed to appreciate the restaurant for lending out the venue. Thanks to the help of the five friends of "Rare Friends" for helping us to shoot.
Feelings after the event - Success of the activities of the Hong Kong Angelman Syndrome Foundation requires both internal and external factors: emphasis should be placed on bringing together a group of angels and families to participate in the activities and on attracting other resources other than the Foundations, both in human resources or and financial resources. The foundation has more development.
The activity at the University of Hong Kong exerts a strong internal and external solidarity force, letting more people especially the young to learn more about the Angelman syndrome and the highly focused program – OneClickCare. HKASF is happy to work with young people, as evidenced by this co-organized activity with five friends from Rare Friends. Their dedication and serious attitude provide us confidence that if we promote rare diseases, their strength should not be underestimated.
Date : 07-10-2017
Time : 13 : 00 - 18 : 00
Venue : Bijas Vegetarian Restaurant, at University of Hong Kong
Enquiries : info@hkasf.org / +852 5125 8111
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