Workshops

Joint workshop with HKARD

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Recently, HKASF held its first exchange workshop with the Hong Kong Alliance for Rare Diseases (HKARD) at Small Angel Resource Center. We invited colleagues from HKARD to conduct a targeted research survey on angels and their caretakers. The purpose is to gain insights into the family needs of rare patients, collect substantive data to conduct policy studies, and reflect them to relevant authorities, suggesting improvements in related policies or measures.
Through this study, HKARD and HKASF expect to gather more truthful evidence, condense greater voices and strengths, thus enable more people to pay more attention on rare diseases, convey opinions and appeals to the relevant units, and strengthen support for rare diseases.
For the purpose of this interview survey, we specifically divided the center into multiple independent zones to allow respondents to express their opinions freely with full privacy and space. For parents having finished their interviews, they can take care of the little angels with food and music.
Our multi-purpose "Little Angel Resource Center" do makes us feel like home, surely a comfortable and enjoyable place.

Date : 28-4-2018

Time :

Venue : Small Angel Resource Center

Enquiries : info@hkasf.org / +852 5125 8111